Hey everyone,

We've decided to run this 10k for Ehler-Danlos Support UK because we believe that physical invisible illnesses such as EDS are disregarded and unsupported in the UK. 

Our flatmate Eilidh has been battling complex chronic illnesses since she was 13 with very little support or help through the NHS. At its worst, she's had to spend months and even years completely bed bound and for short periods of time was reliant on a wheelchair. Eilidh's first proper diagnosis took 5 years to obtain due to not being believed and the multi-system nature of her condition. Almost 10 years later, she still continues to get regularly tested and remains without a full picture of her medical health. 

EDS encompasses complex syndromes affecting many systems of the body at once. Symptoms commonly include, long-term pain, chronic fatigue, dizziness, palpitations and digestive disorders. These symptoms can be completely debilitating and destroy the life you had envisaged for yourself. 

EDS Support UK aims to create medical pathways within the NHS for invisible illnesses relating to EDS and making diagnosis more obtainable. They run support groups for patients no matter where they are on their EDS medical journey and also seek to raise awareness within the UK and the NHS. 

People with invisible physical illnesses, receive roughly 7p per year per patient for researching purposes. So genuinely any donation would be very much appreciated.  

Lots of love,

Karina and Ella