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Harry would like to invite his family and friends to join him virtually to celebrate his birthday and 18 months post transplant. 

Harry was diagnosed with chronic kidney disease at 3 years old. Unfortunately, there is no cure and with only 3 types of medication to treat the disease, and one round of chemotherapy, sadly Harry's kidneys failed when he was 5. Harry then started pd dialysis at home, 10 hours every night for almost 2 years. Harry suffered many side effects from kidney failure and dialysis such as high blood pressure, headaches, vomiting, itching, cramps, lack of appetite, and seizures. Harry was on the waiting list for a diseased donor for a year, while a live donor was investigated, but unfortunately the call did not come. However, in March 2019, a match was found via the living kidney sharing scheme. Harry's dad donated one of his spare for Harry to receive. I am pleased to say that both are doing very well since transplant. Harry's quality of life has significantly improved and is now enjoying things that all children do. 

So, as you can see, Harry has climbed many mountains. 

Our plan this year was to ask Harry's family and friends to join him in walking a mountain, Pen y Fan. However, as Covid-19 has got in the way, we thought it would be great to still celebrate Harry's birthday and transplant, virtually. 

Harry's been a patient at the Children's Kidney Centre at UHW Cardiff since he was 2 years old. The team are amazing and we are so fortunate to have the NHS. We will always be grateful and thankful for all that they do. However, the Centre, is part of the old hospital building and is in need of refurbishment. The only way to test kidney function is by blood test, and so children have no option but to go to the hospital regularly. For some this can be traumatic, especially for families. New surroundings and updated resources would really help the experience. 

The Paul Popham Fund are leading this project and supporting families of the centre. Their refurbishment campaign has a goal to raise £132.000, with £4.000 already raised.

So can you help?

All you have to do is walk, run, cycle or climb the distance of walking up Pen y Fan. That's 4 miles, 10,000 steps or 6.4 km in one day. You can either sponsor Harry or raise your own funds for Paul Popham Fund. 

This can be done in your home, garden or outdoors - anywhere! 

Harry would love you to join him in completing this event by 11th October 2020. 

Good luck and thank you for your support.