Judith's Tote bag marathon

Judith Parker is raising money for PNH Support
£280
raised of £200 target by
17 supporters
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Tote bag marathon · 28 January 2023

Super Rare is a campaign where we are asking people to fundraise to help people affected by rare bone marrow conditions. The theme for 2023 is Stronger Together - because seven small charities are coming together to join the campaign

Story

PNH Support is a charity that supports people affected by Paroxysmal Nocturnal Haemoglobinuria (PNH). The charity provides information and peer to peer support, brings people together, advocates on their behalf and holds a biennial family conference

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About the campaign

Super Rare is a campaign where we are asking people to fundraise to help people affected by rare bone marrow conditions. The theme for 2023 is Stronger Together - because seven small charities are coming together to join the campaign

About the charity

PNH Support

Verified by JustGiving

RCN 1161518
www.pnhuk.org
We support patients living with Paroxysmal nocturnal haemoglobinuria (PNH) and their families in England, Wales and Northern Ireland . Our vision is "No PNH patient in England, Wales and Northern Ireland is alone. All are represented and enabled to live to their full potential with PNHi". s an ultra-rare bone marrow failure disease. Our mission is "We provide support through educational resources and advocacy, as well as peer to peer contact." PNH is acquired (which means it is not inherited) and affects 1.3 people per million. Those living with this condition can require life long treatment to address symptoms such as extreme fatigue, breathlessness, pain and sometimes complications such as blood clots and kidney damage.
Find out more about fundraising with JustGiving

Donation summary

Total
£280.00
+ £62.50 Gift Aid
Online
£280.00
Offline
£0.00

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