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This is Josh, he is 9 years old

When Josh was 2 and a half he was diagnosed with a rare progressive disease called Maroteaux Lamy Syndrome (MPS VI).

There are only around 30 people affected with MPS VI in the UK and just 1,100 world wide!

Josh has a weekly infusion to help slow down the progression of the disease which affects his Eyes, Liver, Spleen, Heart and Bones, but there is NO cure!!

Josh is the happiest boy in the world...despite what he goes through, he has had over 350 infusions and will have them every week for the rest of his life.

Josh goes to school 4 days a week and loves football, he tries to be a normal boy, but he is fighting a huge battle. We need a cure for this horrible disease. .. and you can help!!

The MPS Society have been amazing to us from day one, they help families affected with MPS VI and other MPS diseases all over the country and help fund vital research into these terrible diseases.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving .  Once you donate, they’ll send your money directly to the MPS Society.

Thank you 

Love Josh and all the family x