I'm supporting Nerve Tumours UK because their mission means a great deal to me. They provide crucial support to people living with the Neurofibromatosis - the conditons that cause nerve tumours.

Our little girl Alba was diagnosed with NF1 in July 2020, just in time for her Birthday. Not many people know of the daily struggles she faces, she has a tumour which covers almost half of her back and is covered in cafe au lait birthmarks (her little patches). This condition means that she can grow tumours at any time on any part of her nervous system, these can be trouble free or life threatening, this is her daily lottery. This is just one of the many complications Alba deals with in her everyday life. She is currently waiting for an operation to remove as much of her existing tumour as they can.

Obviously we were sideswiped with Alba’s diagnosis and her subsequent battle. We knew nothing about this disease or its many complications. Nerve Tumours UK have helped us get to grips with this and help Alba and our family understand what it entails, they have also supported School and help all of Alba’s friends understand.

Alba takes all of this in her stride and always has a smile on her face and a cheery word for everyone, she truly is our little warrior.

Alba has a constant challenge everyday,  which puts the London Marathon to shame so please dig deep and help me drag my 44 yr old dad bod 26.2 miles to help raise much needed funds so that Nerve Tumours UK can continue to support us and many many other families that desperately need it.

Just in case you’re wondering I unfortunately had to defer my place until 2025. A couple of niggling injuries blew my training plan and we also got Albas Op date  and her recovery time after meant I would be unable to leave her for the Marathon date. I will push on to 2025 which ironically is 20 yrs since I last ran it, wonder if it’ll be any harder !!!!!

Cheers

Johnny (and Alba)

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