May is Prader Willi Syndrome Awareness Month

There will be fundraising Pilates classes on Mondays and Thursdays raising money for the FPWR.  Some classes will be for children with PWS, some for carers for children, and some general Pilates for everyone.

Last year I took two road trips to visit families with PWS to raise money for the FPWR who fund research into improving the lives of people with the condition.

This month I'm taking the road trip online!  It will save on fuel, road miles and we'll be able to reach families all over the world.

Every day in May I will be offering my Pilates knowledge to people with PWS.

My son Albie has Prader Willi Syndrome which has given him very low muscle tone. Using my skills a Pilates Teacher I have been able to help him get stronger and move about.

PWS is a very rare genetic condition which has many life changing implications which change as the children grow.

We shall be conducting the sessions over Zoom and recording and uploading them to a closed PWS forum so that other families might also get some inspiration to help train with their children.

The charity which runs the forum is called the FPWR UK ( the Foundation for Prader Willi Research UK)

Any money raised over will go straight to the FPWR UK to help with invaluable research into this condition which will help to change the future of all these kids.

Thank you,