Our eldest daughter was diagnosed last year with Epilepsy and it was like the rug had been pulled from under all our feet when we were told. We didn't expect it and certainly never contemplated it either as we typically assocciated 'fits' and 'episodes' with someone having a seizure on the floor and thats it. But Lilli doesn't suffer from the stereotypical epilepsy, she has absent and myotonic seizures and since diagnosis she has been prescribed medication which has now stopped these. 

Any money that I could raise to help with any research for drugs,  support those who have been diagnosed and also help educate people on all the facts and symptoms etc is my aim

So I' m going to attempt to carry out something everyday that I have never done before each day of the year for the whole of 2019 and will document it on social media too for all to see using #ihavenever365challenge  

All suggestions on challenges are always welcome and any help people can provide to enable me to carry out the challeneges is warmly welcomed.

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