The only Australian charity supporting families affected by the rare birth condition, congenital diaphragmatic hernia (CDH).
CDH means being born with a hole in the diaphragm, and affects 1 in 2,500 births. This week, 2 families will receive a CDH diagnosis. The fatality rate is 50%. Families are shattered by the loss of their child. CDH survivors face ongoing health complications. For a family receiving a CDH diagnosis, fear and anxiety can be overwhelming.
We fund research, deliver education, provide support services and deliver hope.