Stephen Tighe

Gaelforce for Max

Fundraising for The Society For Mucopolysaccharide Diseases (The MPS Society)
£2,162
raised of £1,000 target
Donations cannot currently be made to this page
Gaelforce, 25 July 2012
The Society For Mucopolysaccharide Diseases (The MPS Society)

Verified by JustGiving

RCN 1143472 and Scotland SC041012
We support affected individuals & families to raise awareness of rare conditions.

Story

We hope to complete Gaelforce in aid of The MPS Society. Our friends young son Max suffers from the very rare, incurable condition known as Hunter Syndrome (also known as MPS II). Research is urgently needed to find a cure for this devastating and life-limiting condition. 

Mick Kirwan, Neil Mitchell, Philly O'Carroll, Barry Hicks, Conor Swendell and Stephen & Eamonn Tighe are going to complete Gaelforce on August 18th. Gaelforce West is the largest one day adventure race of its kind in the world. It is a multi-sport adventure race involving cycling, running, hiking and kayaking. The course of approximately 67km stretches from the stunning Glassilaun beach to Westport. In total we will run for 21K, cycle 45.5K, Kayak for 1K and climb Croagh Patrick while we are at it!!!!! http://www.gaelforceevents.com/west/

Hunter syndrome is a rare multi-organ storage disease that occurs when an enzyme your body needs is either missing or malfunctioning. Because the body doesn't have adequate supplies of the enzyme to break down certain complex molecules, the molecules build up in harmful amounts in certain cells and tissues. The build-up that occurs in Hunter syndrome eventually causes progressive physical disability, pain and, in many cases, severe degenerative mental deterioration resulting in death in childhood.

The MPS Society supports children and adults affected by MPS and related disease, their families, carers and professionals. We provide a unique needs-led advocacy service, organise and manage events to enable those affected to come together to share experiences and learn about the latest developments in clinical management and treatment, and fund and encourage research into these devastating diseases.

Due to the rarity of the disease (2,000 sufferers worldwide) we are supporting a UK based charity and just want to make you aware that all donations will be in Sterling. £5 = €6.30 £10 = €12.60 etc.

But to do this we really do rely on the generosity of people like you to help us continue our vital work. You can make a difference today.

Share this story

Help Stephen Tighe

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

The Society For Mucopolysaccharide Diseases (The MPS Society)

Verified by JustGiving

RCN 1143472 and Scotland SC041012
The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Donation summary

Total raised
£2,161.40
+ £12.50 Gift Aid
Online donations
£2,161.40
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.