Story
Mollies Raffle for Action for AT.
Many of you know Mollie was born with a rare disease called Ataxia, a progressive and debilitating movement disorder that effects physical activity, fine motor skills, speech and some internal organs. Much to our devastation we have recently been given the heart breaking news that it is extremely likely she has a condition called Ataxia Telangiectasia.
We were not expecting this after previously being given the all clear for ‘AT’ in 2019 - but due to new genetic testing techniques they have now found a genetic mutation in Mollie that they have not seen in anyone before.
We have a further wait, and more tests for Mollie, but we urgently need to raise money and awareness for this rare disease that we do know is likely to start to deteriorate from the age of 5... Mollie is 5 in September. As a parent to write this down in words is awful but to know it’s our reality - you cannot begin to imagine this feeling.
We live in hope that with some extremely clever people out there - and multiple research studies taking place right now - one day there will be a treatment or cure for AT for Mollie and the many other kids like her.
We will be fundraising throughout the year, as restrictions begin to lift but to kick start this we are hoping to raise some money with an Easter Raffle - with some great prizes!
💗💗💗The Prizes💗💗💗
💕A fun nights sleepover for 2 (with a choice of 11 different designs to suit everyone!) generously donated by ‘Fun Nights and Fairy Lights Sleepovers💕
💕£100 Love2Shop Voucher generously donated by our lovely friend Emma 💕
💕A £20 voucher for sweet treats of your choice kindly donated by ‘Simple but Delicious’ 💕
💕A £25 meal voucher kindly gifted by The Ship Tavern at Lower Upnor 💕
💕Sweetie bouquet And Chocolate bouquet from SweetDays💕
💕A Bottle of Chapel Down English Sparkling Wine💕
💕£20 Voucher for Ice Cream treats from the lovely Moe’s Ices 💕
💕A tray of delicious Easter Cupcakes from Hegarty Cakes💕
💕2 Hand crafter Silver Crosses on Chains made by Dave’s Jewellery 💕
💕A Fragrance Flower kindly gifted by ScentVenture💕
💕As well as 10 x Mini Egg Easter eggs for runner up prizes💕.
Tickets are £5 for 3 tickets, please make your donation and then message us on Facebook @dancingdollymollie confirm and receive your numbers. (If you do not contact us we cannot provide numbers and your personal details are not passed on to us in this page).
Please be aware the Fun Nights and Fairy Lights Sleepover is only available on a 30 minutes drive time from Bluewater Shopping Center.
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