Thank you for visiting Ellie's Just Giving page in aid of Epilepsy Action.
As you may know, our beautiful daughter, sister and friend passed away suddenly on February 9th 2010, aged 18. To lose such a young person has been heart-breaking for all those close to her. But my sister was lucky in that she knew nothing but happiness - she had wonderful friends and was living her life to the full at Bournemouth University where she was studying. We lost her unexpectedly, but the blessing is that
we will always remember her as being happy, loving and full of fun.
Ellie had
epilepsy, a little understood condition which affects people in many different ways. Put very, very simply the brain is subject to sudden spikes of electrical activity, which can cause symptoms from mild and momentary 'absences' to severe seizures or convulsions. To most people who knew her Ellie was an entirely normal and healthy teenager, and the illness was therefore hidden for most of the time. At the other end of the scale some people suffer many seizures a day and 'normal' life is impossible. The brain remains one of the most mysterious parts of human physiology and more research is vital if progress is to be made in understanding and treating the condition.
For this reason, we have chosen
Epilepsy Action (EA) to receive donations in memory of Ellie. I have set out below the Vision, Mission and Aims of EA, but please visit their website for full information at
www.epilepsy.org.uk :
__________________________________________________________________________________________
EA Vision - To live in a society where everyone understands epilepsy and where attitudes towards the condition are based on fact not fiction.
EA Mission - To take action to meet the identified needs and aspirations of all people with epilepsy and those with an interest in the condition.
EA Aims -
- Raise and maintain awareness about epilepsy and about Epilepsy Action’s work.
- Educate people about the facts about epilepsy and improve their understanding of the condition.
- Bring about permanent change for the social and medical benefit of people with epilepsy.
- Provide advice and information about epilepsy that is relevant to peoples’ needs and that is accessible in terms of location, availability and cost.
- Promote all types of research into epilepsy and undertake non-laboratory social and medical research into epilepsy.
- Maximise Epilepsy Action’s resources by developing its fundraising activities and income consistent with its immediate and long term financial needs and using its resources effectively and efficiently.
- Engage with the Education, Healthcare and Social Care sectors to ensure that epilepsy is fully understood and the needs of people with epilepsy are supported.
__________________________________________________________________________________________
Thank you so much for any contributions you feel able to make.
Jenny, Linda and Bruce x
__________________________________________________________________________________________
Donating through www.justgiving.com
Donating is simple, fast and totally secure. Your details are safe and will never be sold on. Once you donate, your money will be sent directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer.
* This page will stop taking donations on 30th June 2010, which would have been Ellie's 19th birthday