Eve Martin

Eve’s page

Fundraising for Noonan Syndrome Association
£580
raised of £500 target
Inflatable run for Noonan syndrome , 8 February 2022
We support, raise awareness & fund research to improve our members' quality of life

Story

Hey all firstly I wanted to say a HUGE big thank you and introduce you to Ella who is very nearly 6. Ella was diagnosed with Noonan syndrome at 6 months old. When she was born she had extreme respiratory issues, severe jaundice, was extremely floppy and very swollen. They checked her over and found a heart murmur this went on to finding out she had heart disease- pulmonary stenosis with dysplastic valves. Ella had heart surgery which was terrifying and life for the first 6 months was in and out of hospital. As time has gone on Ella has done incredible, with physio, sleep therapy, food therapy and very determined parents lol Ella now has her heart issues, lymphedema, sleep issues (doesn’t sleep enough one tired mumma!) and is funny with food apart from that we r extremely lucky, unfortunately others aren’t and life is tough for them. The Noonan syndrome association has been such an incredible support for us and to raise some pennies to give back really means the world to us. Raising money for noonan syndrome means the world to Ella and her family.

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About the charity

We work across the UK with families and individuals affected by Noonan Syndrome, a genetic condition which can cause significant health and developmental issues. Our mission is to significantly improve members' quality of life through direct support, raising awareness and instigating research.

Donation summary

Total raised
£580.00
Online donations
£580.00
Offline donations
£0.00

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