When Saoirse was born we we're immediately told of a very large birthmark on her back.  We didn't know what had caused it or if it would  cause Saoirse issues as she grew older and thanks to Covid we couldn't see professionals for months. Saoirses is cosmetic but some children aren't as lucky. For some it's fatal. We have had a fantastic team behind her ( Dr Kinsler and Co at Great Ormand Street) are beyond what any parent could hope for on their team. But they need support.

I will be walking 244 miles in April as Saoirse was born on 24/04! 

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