Thanks for taking the time to visit my JustGiving page, you! 

Between 1st July and 8th November 2021, I am going to be doing 100 burpees a day..... That is a whopping 13,100!!!!

 I am doing this for Otis, Sheean and Simon, a beautiful family, who we really do love so much. 

Otis has, this year, been diagnosed with a very rare degenerative, genetic disease called Tango2. The symptoms can be life threatening and affect all parts of the body, as well as neurological development. A common effect of Tango2 is recurring metabolic crises. This can happen at any time and can result in losing consciousness, hypoglycemia, kidney failure, coma and cardiac arrest . There is currently no cure for Tango2. 

Raising awareness and funds for this charity is absolutely crucial. There were around 30 people in 2018, IN THE WORLD with this disease. Now there are over 100. Not enough is known about it, it was only discovered in 2016, and we NEED to raise money for more research to be done. 

The following link is for the foundation itself https://tango2research.org

This link here will tell you what is known about the disease so far https://rarediseases.org/rare-diseases/tango2-related-metabolic-encephalopathy-and-arrhythmias

This really is incredibly important,to me and to this amazing family. Every single share and donation will help and is so, so appreciated. 

Thank you, for taking the time to read this. 

Carly x

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.