Dear Family and Friends, 

On December 31, 2016 our world was blessed with a 3rd child. A beautiful girl Camila. She has the dimples that make you want smile and big glossy brown eyes that will brighten your day. She loves to go to school and loves to play with her sisters, cousins and friends. 

July 1, 2022 was the worst day of our lives as we learned that Camila was diagnosed with Ataxia-Telangiectasia (A-T). A-T is a genetic disease that causes loss of muscle control and balance, cancer, lung disease and immune system problems in children and young adults, shortening their lives. The average life expectancy for children living with A-T is the late teens to early 20's. Camila will progressively deteriorate and could end up in a wheel chair by the age of 10. It has been emotional and hard for our family. Unfortunately there is no cure for A-T but with your help we can help researchers find one. 

A-T is extremely rare: there are only about 500-600 confirmed cases in the United States. The rarity of this orphan disease, unfortunately, puts it at the bottom of the list for federally funded research. There is no motivation for funding by large pharmaceutical companies as the financial benefit to these companies does not exist. Because A-T is a multi-system disease, scientists believe that A-T research will help more prevalent diseases such as Alzheimer’s, Parkinson’s, AIDS, and cancer.

Our family has high hopes that by the time Camila is a teen there is a cure. Thanks in advance for your donations and continued support.