Story
I will be participating in the BIGGEST and HIGHEST ever tandem skydive event in Jersey this coming August, jumping 13,500 feet to help raise money for the charity Hope For John.
Sadly John Sharp lost his battle on the 8th January 2012.
Lafora body disease is an inherited genetic disease where the child inherits a copy of each of their parents faulty gene. This causes the child to make too much starch in their bodies. This then turns into hardening structures which grows with the child, so does not become apparent until early teen years. Lafora affects the whole body, especially the brain , this leads to seizures, swallowing difficulties, mutism, loss of limb movement, hallucinations, dementia and eventually death.
Thank you for taking the time to visit my JustGiving page. Please donate to this worthy cause, every little helps!
Thank you for your generosity :)