Thanks for taking the time to visit my JustGiving page.

No, no one should have to attend their own child's funeral. Let alone twice in just over a year.

BUT at least we now have answers. If we can raise awareness so that no one else has to go through what we have been through, there will be some reasoning to it all.

I have a "rare" blood platelet disorder, similar to rhesus disease. This causes NAIT in my babies https://www.naitbabies.org/

My body sees the babies as foreign bodies and attacks their platelets. It gets worse with every pregnancy. The reason I say it is "rare" is because it is actually thought to be underestimated, it just isn't routinely tested for on the NHS. It isn't even discussed. If I had known of this condition last year, we would have paid for the test, regardless of the NHS. We would then have known to get treatment and we wouldn't be here now, spending another August mourning the death of our baby.

There is a treatment BUT it's in the early stages, extremely exhausting and has numerous side effects. Being hooked up to an IV for 4-5 hours a day, every week from 12 weeks of pregnancy sounds like we're living in the 1920s. More research is needed and more awareness. Late losses should be tested.

There is also a theory that this condition causes Autism. Having an Autistic son, had I known about the condition, I would have asked to be tested for it.

If you can donate in Aurora's memory, please do. Either way, please share. We can't let even one more family go through this pain when a simple test would prevent it.

Aurora Eileen Turner Leigh 22/07/2023

Tiniest Linda Leigh 02/08/2022

2 sisters, forever together 👶🏼👶🏼💗💗

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