Alice's Story.

I was diagnosed with Lupus, Sjogren's Syndrome and Fibromyalgia on the 2nd January last year after some eventful times! (Meningitis, Septicaemia, double pneumonia to name a few over Christmas/new year 2012/2013) In the past year I've had a few ups and downs, but I'm determined to kick Lupus' ass this year and show it who's boss. I want to help raise awareness of this condition so we can get better treatment, a quicker diagnosis and get a greater understanding of this condition.

On a daily basis, I am in some kind of pain, although the severity of this can vary. As can where the pain is in my body. On a good day, I can lead a fairly normal life. On a bad day, I can't move. Someone has to feed me, wash me and basically cater for my every need. And then there's the in between days! I ache, I push myself to far, I limp around work as I don't want to let people down.

Since having my diagnosis and doing research around lupus. I found the Hibbs Lupus Trust. They have been so supportive and helpful to me and my family. They have provided support meetings, opportunities to chat to other sufferers, consultant advice, hypnosis sessions, physio and occupational therapy information. 

Last year we raised over £600 for the Hibbs Trust. It would be great if we could raise some more. 

Thanks for taking the time to visit my JustGiving page.

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