Aisha Seedat

Aisha's page

Fundraising for The Society For Mucopolysaccharide Diseases (The MPS Society)
£2,445
raised of £3,000 target
Donations cannot currently be made to this page
Aisha Seedat's fundraising, 17 May 2010
The Society For Mucopolysaccharide Diseases (The MPS Society)

Verified by JustGiving

RCN 1143472 and Scotland SC041012
We support affected individuals & families to raise awareness of rare conditions.

Story

Hey, Aisha here and I would just like to say please show your support for the MPS Society.  MPS is short for Mucopolysaccharidosis. I have Type IVa of the MPS condition, which is known as Morquio Syndrome.   The condition is very rare(...I believe there are 27 affected persons.)

Throughout the UK over 1200 children and adults affected by an MPS or related disease rely on the Society for emotional, practical and social support. The Society also raises vital funds for medical research and promotes awareness of these diseases through regular conferences, information days, regional clinics and information resources. The efforts and contributions of voluntary fundraisers and donors, individuals and organisations, are vital for the Society to continue their work.

There are so many ways you can help, whether it’s a sponsored sporting challenge or a one off donation, whichever appeals to you most. It all makes a difference.

If you have the time I would like you to read up on the links below before donating.  That will make my family, and myself, very happy!  Then... I know I have created some serious awareness into my condition!  And if you are touched by what you read -  I know you will tell others!

Remember every penny counts no matter how small! Its the awareness that matters!

This year MPS Awareness Day is 15th May 2015.  It gives you the chance to wear BLUE and support me and many other MPS families and donate as little £1 for showing you care.


You will find lots of information on www.mpssociety.org.uk  head on to Morquio or Aisha's story.

You can contact me at a1sh@me.com  for any information, offers, and messages of support.  I love hearing from people.

Donating through JustGiving is simple, fast and totally secure. Once you donate, they’ll send your money directly to the MPS Society and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

 

 

 

 

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About the charity

The Society For Mucopolysaccharide Diseases (The MPS Society)

Verified by JustGiving

RCN 1143472 and Scotland SC041012
The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Donation summary

Total raised
£2,444.37
+ £193.69 Gift Aid
Online donations
£2,434.37
Offline donations
£10.00

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