Story
Thanks for taking the time to visit my JustGiving page.
Dara was diagnosed with Glut1 deficiency syndrome in November 2020. The only treatment for this is the ketogenic diet so he was fast tracked to be started on the ketogenic diet in December 2020 thanks to all the great staff at Temple St. Hospital in Dublin who trained us up really well. However we went from not knowing anything about the ketogenic diet to Dara starting on it a few weeks later during a week long hospital stay. The staff at the hospital recommended to look at the Matthews friends website. Through this we gained access to an unbelievable wealth of information on the everyday application of the ketogenic diet from recipes to advice on monitoring, reading materials and much more in between. They also have a really helpful carers Facebook forum and weekly zoom meetings. Not to mention the wonderful starter pack we received.
The above is just how we have benefited. They also run their own ketogenic clinics and are very much involved in ongoing research etc. This charity is very much hands on and directly helping those in need of it. If you are looking to make a donation to a charity this Easter in aid of Dara’s birthday please consider Matthew’s Friends.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.