Team Sophie!

This year in honor of Williams Syndrome Awareness our family has chosen to support the Williams syndrome community by creating a team page that will donate directly to the current Williams syndrome study at the National Institutes of Health (NIH). Two very well known and pretty amazing doctors who are experts in Williams syndrome; Dr. Kozel (Geneticist/pediatrician) and Dr. Levine (cardiologist) head this study at NIH. The study focuses on the following *critical* areas that are specific to WS:

● Natural history of blood vessel disease;

● How to minimize the risk of sudden death;

● Blood vessel disease and aging;

● Genetic changes and blood vessel disease severity;

● Impact of blood vessel changes on development and other body systems.

Participating in this study means Sophie is able to receive a full medical scan from head to toe (and some) which not only gives us peace of mind but is also helping collect life saving research. Sophie has been participating since the study started back in 2016 and we are looking forward to our upcoming visit in July.

We hope you will consider helping us reach our goal by making a donation in honor of Sophie!! Together we can do more than we ever could alone, help us fund lifesaving critical research!  Thank you for being a part of WS Awareness Month 2021!