Story
Alice & Nancy are walking from London to Brighton to raise awareness, support and funds for Tiny Tickers.
This wonderful charity has big ambitions to improve detection, care and treatment of babies with serious heart conditions. This cause is very close to our hearts as Nancy’s beautiful little boy Monty was born in May 2023 with two heart conditions called Aortic Valve Stenosis and Bicuspid Aortic Valve.
Monty’s condition was not detected in any pregnancy scans or newborn checks before leaving the hospital. At just 8 weeks old, Monty had a totally random and unrelated temperature so we took him to A&E as a precaution - this is when doctors first heard a heart murmur. Monty had a heart scan and his condition was diagnosed, which came as a total shock to us all.
After initially being told that Monty shouldn’t need any treatment in the next few months or years, after just one month his condition had progressed and his doctors advised an operation was necessary.
Monty’s first operation was in October 2023 and has thankfully made his heart more stable for now - he will be monitored regularly and Nancy and his family will be told as and when further operations will be required.
We feel so unbelievably lucky that Monty’s condition was picked up and diagnosed when it was. It could have so easily gone unnoticed and Monty would have been in a very dangerous, potentially fatal situation. This is why Tiny Tickers is such an incredible charity with such an important goal.
We will begin the 100km 2 day trek on Monty’s 1st birthday, 25th May 2024. Training has already begun and although we are nervous, we are very excited to take on this challenge to raise money for such an important cause.
Any donations to help other children with similar conditions to Monty, would be so very much appreciated. Our target is £3660 - £10 for every day of Monty’s first year!
Thank you!!
Alice and Nancy (Monty’s Marchers) x
A note from Tiny Tickers…
A baby is born with a serious heart condition every two hours in the UK and despite congenital heart disease being one of the biggest killers of infants, only around half of congenital heart defects are picked up during routine prenatal scanning. With your help we can provide a safety net for the 1,000 babies each year that leave hospital with their heart defect undetected, increasing detection rates, improving a baby’s chances of survival and long-term quality of life.