Hi - Thank-you for visitng my teams page - My name is Angelina Faith Mills and I am 6 years old. For those of you who dont know me I was born with a very brain disorder called Sturge Weber Syndrome, for the 1st year of my life I suffered with daily uncontollable siezures and episodes that left half of my body weak (typical appearence of a stroke) I couldnt do many of the things other children my age could do and all I wanted to do was sleep due to the seizures taking all my energy! On June 24th 2010 at Great Ormond Street Children's Hospital I underwent a very serious brain operation known as a Hemispherectomy - this involved dissconecting the right side of my brain and removing some parts to alleviate the seizures that medication wouldnt, I spent 7 hours in surgery followed by a further 7 days in hospital.
Throughout the last 5 years I have been seizure controlled and no longer require daily anti-epileptic medication, I still and always will have to work that extra bit harder than anybody else, I cannot use my left hand for any motor skills what so ever and have very limited mobility in my left arm and left leg, I have lost all my vision in the left side of both my eyes and continue to attend many hospital and thearpy appointments but.... I will not let my disabilites get in the way of what I want to do and I want to Skate!
So..... please join me on 24th August 2015 at Funkys in Norwich and take part in a 3 hour sponsored skate for - Sturge Weber UK - a registered charity who have that supported me and my family throughout this journey
To join the team
Email: lisa@sturgeweber.org.uk or call 0777 197 4518 or click - Join the team and follow the page istructions, once your justgiving page has been created please email your name and address to: lisa@sturgeweber.org.uk
so that your fundriaisng pack and entry ticket can be sent. There will be a £5 entry charge which can be paid before or on the night but if you are able to raise/collect and bring along £30 or more in sponsor money your entry will be free or refunded if paid in advance.
Entry fee also include
entry to the soft play adventure area for all children
free skate hire for anyone who do not own skates.
Thank-you for visiting my team's fundraising page.
You'll see our team fundraising target on the right. Your donation can really help us smash this goal
Remember: Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never share them with anyone or send you unwanted emails. Once you donate, they'll send your money directly to the charity. They'll make sure Gift Aid (an additional 25%) is reclaimed on every eligible donation by a UK taxpayer, too. That means more money goes to the charity, faster, with JustGiving.
Thank-you from me and the team!
