About STXBP1 Foundation
The STXBP1 Foundation is a parent driven foundation dedicated to raising awareness of STXBP1 Encephalopathy (a rare genetic disorder) among parents, physicians, scientists, and pharmaceutical innovators in order to better understand STXBP1 and thus develop better treatments and ultimately a cure.
stxbp1disorders.org
heather.jones@stxbp1disorders.org
STXBP1 Foundation Registered charity number 821439459
