stacey williams
stacey's page
Fundraising for Tree of Hope
Story
I am having a T for tom shaved into my hair and having a tattoo saying help Tom toddle because Tom needs our help and we can help, this will be done at a fundraising day on 11th august 2013, this is Toms story..
Hi my name is Thomas but you can call me Tom. Thank you for taking the time to look at my little place on the web. I would like to tell you a bit about myself don't worry I'm only 4 so it wont take long. I have a twin brother called Sam we were born at 26 weeks just 3 months early, i was the heavy one who weighed 1.4kg and SAM weighed in at a massive 800g. we both had to spend a lot of time in hospital as we needed help with our breathing, feeding and just growing.
We were in a two different hospitals for just over 12 weeks then they let us go home, Sam came home on oxygen, which i didn't need which was nice. As time went by my mummy and daddy noticed that i was not doing the things my brother was, like crawling and trying to walk as a normal baby/toddler would do so of i had to go back to the doctors just for a check up. It turns out i got quadriplegic cerebral palsy(CP).
Having CP means i cant use my limbs it makes it hard for me to do the things i like to do which include reading, playing cars, riding my bike, trying to play football (which is hard when you cant stand up on your own) and just normal things a 4 year old likes to do. unfortunately i always have to wait for Sam to get the toys out and then he gets to decide what we play most of the time, unless hes in a bad mood and doesn't want to play or get me any toys to play with.
My mummy and daddy have been trying to do everything for me that they can, they spend hours doing my physio with me and just as much time looking at different options that could help me. one big option is an operation called Selective Dorsal Rhizotomy (SDR). there also the options of physio and equipment which is why we are now trying to raise money with the plan that at the end i will be more independent and be able to play with Sam and I being the one to get toys and games for him to play with.
Thank you for looking at my page if you think you maybe able to help raise funds for me i would(and mummy/daddy) would be very grateful
p.s Sam is ok now and doesn't need the oxygen just in case you were wondering.
from TOM
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