Story
This is the beginning of our fundraising journey!!
We will be working our socks off to raise as much money and awareness for the Cystic Fibrosis Trust, for our daughter Annabelle who has CF. This money will go towards research into new medicine/treatments and hopefully one day finding a cure.
Like every parent, all we want is the chance for our daughter to live a life unlimited.
A day in the life of Annabelle (age 1):
- Antibiotics twice daily (more if unwell)
- Vitamin supplements daily
- Physio twice daily (One using a PEP mask) and is extremely active to ensure she keeps the mucus from clogging the lungs. This also increases when she is unwell.
- Pancreatic Enzymes taken before every meal which contains fat to ensure her body absorbs the fat as she is unable to do this on her own (pancreatic insufficient).
In the last year Annabelle has been going to hospital every 8 weeks for consultant appointments and has recently had her annual review which included an Xray and blood tests. This will be the norm for Annabelle for the rest of her life.
Annabelle is always smiling and has brought us so much happiness and love. She takes everything in her stride and is unbelievably strong. she never fusses about medicine, physio or hospital visits. We are so very lucky to have her in our life.
As much as we can work hard giving her giving her the treatments available, healthy food and exercise, this condition is progressive. We live in hope that the money raised will change this and thank you for all your support, in whatever form this comes in.
Much love,
Shane, Liz, Finley, Oscar & Annabelle!!
xxx