Paul Shields

Ride4Life

Fundraising for The Society For Mucopolysaccharide Diseases (The MPS Society)
£52,550
raised of £50,000 target
Donations cannot currently be made to this page
Sanfilippo Ride4Life, 20 December 2012
The Society For Mucopolysaccharide Diseases (The MPS Society)

Verified by JustGiving

RCN 1143472 and Scotland SC041012
We support affected individuals & families to raise awareness of rare conditions.

Story

Thanks for taking the time to visit our JustGiving page.

Every penny we raise will be going into research and clinical trials to help save the lives of children with Sanfilippo. This disease has no treatment or cure and families with Sanfilippo children have to watch their child die very slowly in front of them. Two of our precious children Sophie (9) and Tom Shields (7) both have this illness and their days are numbered. Hopefully in the not too distant future Sanfilippo children will have a treatment to limit the affects of the disease and one day a cure. We long for that day.

So please dig deep and donate. Huge thanks

www.ride4life.mobi

www.sophieandtom.co.uk

@ride4life2013

 

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About the charity

The Society For Mucopolysaccharide Diseases (The MPS Society)

Verified by JustGiving

RCN 1143472 and Scotland SC041012
The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Donation summary

Total raised
£52,549.67
+ £5,871.12 Gift Aid
Online donations
£28,949.67
Offline donations
£23,600.00

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