Hello and welcome to my webpage:

 

I have now run the half marathon. It was a glorious day, a bit chilly to begin with. The support for everyone around the course was an amazing atomsphere. I thoroughly enjoyed the experience and can't wait to get on with running and my next challenge. I finished in 2 hours and 12 minutes. Placed in 8112 out of 11,000 runners. I would like to thank everyone for their support and kind words of encouragement. I know the MPS Society will appreciate your kindness as well.

THANK YOU EVERYONE!!!!

 

I am running the Bath half marathon on the 7th March 2010. My chosen charity  is The Society for Mucopolysaccharide Diseases (MPS Society). This charity is dear to me please read and find out why!

My Godson was diagnosed with a Mucopolysaccharide Disease, Hunters Disease, when he was 4 years old. He had already been through so much. At the age of 18 months, he was having a major operation to try and rectify a problem with his hips not formed correctly. During this time he was always a happy smiling little boy. Although he was in and out of hospital and both legs in plaster casts. Once he was diagnosed with the condition it steadily progressed. He was unable to walk for long periods of time, loss of a certain amount of hearing , therefore affecting his speech and communication. My friend made the decision that he would not benefit from main stream school and finally managed to secure a place for him in a school for special educational needs. It is here that he has learnt to communicate with others using sign language. He is doing extremely well at school and enjoys being there. He is currently undergoing treatment to help the condition and he is responding well to this treatment. He will be 13 in April and I know that the MPS Society have given the family a lifeline and support that is much appreciated. So I am running for my Godson and friend, Love to them both X

The MPS society represents and supports over 1,200 affected children and adults, their families, carers and professionals. There aim is to act as a support network, bring about more public awareness and promotes and supports research into MPS and Related diseases. These diseases cause progressive physical disability and in many cases, severe degenerative mental deterioration resulting in death in childhood. At present there is no cure for these devasting diseases, only treatment for the symptoms as they arise.

Funds raised could help the charity offer so much more support in so many ways, below are a few:

Access to clinical management and palliative care;

MPS Regional Specialist clinics;

Support with disability benefits;

Paving a child's way in accessing education;

Advising on home adaptations;

Bereavement support;

For further information on the charity and conditions please visit their website:- www.mpssociety.co.uk

Thank you for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

Yours in anticipation Sam Stockham