Roedean School
Roedean's page
Fundraising for DEBRA
Story
Thanks for taking the time to visit our JustGiving page.
Epidermolysis Bullosa (EB) is a disease that anyone could be carrying. One in every 227 of us are carrier of the defective EB gene. This means that 5,000 people are affected by EB. Therefore this could mean your child could be born with this life threatening disease.
EB is an agonising, isolating and restrictive disease. Children are unable to go about normal childhood activities.
The cost of living is exorbitant. The bandages could cost up to £100 per day.
The money being donated does not just go to immediae care it also goes to research.
This cause is underfunded and every penny counts.
Donating through JustGiving is simple, fast and totally secure. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - We raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.