Helen's London Marathon 2025 for Nerve Tumours UK

Helen Lynn is raising money for Nerve Tumours UK

London Marathon 2024 · 21 April 2024 ·

Nerve Tumours UK provides support and information, as well as campaigns and raises awareness on behalf of over 26,500 people in the UK who have NF, the group name for Neurofibromatosis Type 1 (NF1), NF2-related-Schwannomatosis (NF2) and Schwannomatosis (SWN).

Story

I'm supporting Nerve Tumours UK because their mission means a great deal to me. They provide crucial support to people living with the Neurofibromatoses- the conditons that cause nerve tumours.

They are dominant genetic conditions, which means that they can be passed on in families from one generation to the next through genetic inheritance. Similarly, about half of nerve tumours cases recorded have no previous family history of the condition. In other words, it can occur totally “out of the blue”.

My amazing 11 year old niece Lola was diagnosed with NF1 in December 2015 and to this day her family remain on a learning curve, adapting as we go. Lola is a true warrior and no matter what she faces, she ALWAYS does it with a smile on her face!!!Lola has learning difficulties, ADHD, verbal dyspraxia, curvature of the spine, hypermobility and has many MRI’s to check for those nasty tumours! Despite all these challenges we find ourselves to be very lucky that we haven’t found any to date!!!!

It was a huge honour to run the London Marathon 2023 in aid of Lola and Nerve Tumours UK and I am thrilled to have been given this opportunity again in 2025 Please join me on my quest to raise vital funds and awareness for this brilliant charity as they continue to support Lola and the thousands of others living with Neurofibromotosis.

Huge thank you for visiting this page and reading my story.

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Donation summary

Total
£3,886.60
+ £446.40 Gift Aid
Online
£3,886.60
Offline
£0.00

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