Earlier this year my daughter, Sienna, was diagnosed with PANDAS.

Last year Sienna had tonsillitis seven times and struggled with anxiety, in particular separation anxiety.

In February, we saw a sudden shift in her behaviour overnight. She developed sensory issues, became very hyperactive, started having tics, OCD behaviours, and rage outbursts. It didn't feel like "her" anymore which was scary to experience as a parent.

We later learned that this was PANDAS - a condition where a strep infection triggers inflammation in the brain, leading to sudden neuropsychiatric symptoms.

We were incredibly lucky to see a specialist and get a diagnosis. Sienna has now completed her treatment and we're so grateful that her symptoms have significantly improved. As a parent, having answers has changed everything.

Early recognition of PANDAS really matters and improves treatment outcomes. That is why I am running the Royal Parks half marathon in October to raise money for PANS PANDAS UK. This incredible charity supports families living with the neuropsychiatric conditions PANS and PANDAS and is working tirelessly so that every family living with PANS or PANDAS can access the right care pathway, treatment and support when they need it most.

Thank you so much for your support.

Harriet x

For more information on PANS PANDAS UK, please visit their website www.panspandas.org.uk