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Myotubular (centronuclear) myopathy is a rare genetic muscle condition affecting mostly boys from birth. It causes profound muscle weakness, dangerously affecting the muscles that control breathing & swallowing. We fund research but also raise awareness & we support affected families and patients.
Myotubular Trust
contact@myotubulartrust.org
Myotubular Trust Registered charity number 1137177
"Your dedication to Myotubular Trust inspires me to support your cause. Keep up the amazing work! Ps, it's Harry Beck's birthday so of course I am donating xx"
M L donated
"In memory of Oliver Coates Ulrichsen"
Niels and Brenda Ulrichsen donated
£100.00 + £0.00 Gift Aid
"In memory of Ian Lennox."
Anonymous donated
£20.00 + £5.00 Gift Aid
"In Ian Lennox's memory with love from Trisha Hayman and Liz Harman"
Elizabeth Harman donated
£100.00 + £25.00 Gift Aid
"In memory of Uncle Ian, Captain Ian Lennox xx"
Caroline, Nigel, Stephanie, Daniel and Emma donated
£50.00 + £12.50 Gift Aid
"In memory of Captain Ian Lennox"
Melanie & John Spring donated
