About Myotubular Trust
Myotubular (centronuclear) myopathy is a rare genetic muscle condition affecting mostly boys from birth. It causes profound muscle weakness, dangerously affecting the muscles that control breathing & swallowing. We fund research but also raise awareness & we support affected families and patients.
Myotubular Trust
contact@myotubulartrust.org
Myotubular Trust Registered charity number 1137177
