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Myotubular (centronuclear) myopathy is a rare genetic muscle condition affecting mostly boys from birth. It causes profound muscle weakness, dangerously affecting the muscles that control breathing & swallowing. We fund research but also raise awareness & we support affected families and patients.
Myotubular Trust
contact@myotubulartrust.org
Myotubular Trust Registered charity number 1137177
"In memory of Uncle Ian, Captain Ian Lennox xx"
Caroline, Nigel, Stephanie, Daniel and Emma donated
£50.00 + £12.50 Gift Aid
"In memory of Captain Ian Lennox"
Melanie & John Spring donated
"In memory of Captain RN (Rtd) Ian Bruce Lennox. May he rest in peace x"
Anonymous donated
"In memory of Capt.Ian Lennox"
"In memory of Beryl Annie Bullock"
Janet Smith donated
"In Memory of Mrs Beryl Bullock"
