Teresa Jeffery

Abseil for MPS Awareness

Fundraising for The Society For Mucopolysaccharide Diseases (The MPS Society)
£1,859
raised of £600 target
Donations cannot currently be made to this page
MPS Awareness Abaeil, 16 May 2015
The Society For Mucopolysaccharide Diseases (The MPS Society)

Verified by JustGiving

RCN 1143472 and Scotland SC041012
We support affected individuals & families to raise awareness of rare conditions.

Story

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Teresa, Shane, Scott, Kate, Phil, Dave and Mark are abseiling 80ft down Berry Head in Brixham to raise vital funds and awareness of MPS.

MPS is Mucopolysaccharidosis a group of rare genetic disorders which are life limiting.

Corey has MPS1 / Hurler syndrome.  He has undergone a cord blood transplant to slow down the progression of the disease but still faces a challenging lifetime with many surgeries and therapies.

The MPS Society provide advocacy support for our family and funds vital research and clinical trials to try and find a cure for these diseases.  

PLEASE support us whilst we lower ourselves off a cliff - a morning of fear and adrenalin for us compared to a lifetime of unknown trepidation for our child.

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About the charity

The Society For Mucopolysaccharide Diseases (The MPS Society)

Verified by JustGiving

RCN 1143472 and Scotland SC041012
The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Donation summary

Total raised
£1,858.97
+ £113.00 Gift Aid
Online donations
£619.22
Offline donations
£1,239.75

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