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I was first diagnosed with antiphospholipid syndrome (aka Hughes syndrome), but was then diagnosed with Systemic Lupus Erythematosus in 2008. Since then I've had highs and lows. The lowest was when I was told I had a brain lesion, my worst fear. The highest when I was told (thankfully) this was not so, but was in fact caused by peripheral neuropathy). The relief was enormous, Lupus wasn't taking me!  

Lupus affects everyone differently,, but whatever our symptoms and difficulties, the major problem for a lot of us is a lot of pain and extreme fatigue. It's hard for me to say exactly which of my problems are caused by Lupus and which are caused by other conditions, but my life would be so much more straight forward without this damned SLE. 

First under the care of Prof B Hunt at St Thomas, now seeing one of her team, Dr V McDonald, the care and treatment has been 2nd to none. But not everyone is so lucky. With more funds, one day this horrible condition, I hope, will be curable. Having my hair shaved off, is my way of doing a little towards that goal. 

Thank you for reading this

Michelle (Mickey) x