Little Mila is just 8 months old. She was diagnosed with Tuberous Sclerosis Complex (TSC) in March 2014 and faces many challenges ahead. TSC causes tumours to form on vital organs like the brain, kidneys, heart, lungs, eyes and skin. There is no cure but new research is helping to find better treatments.

We at JGM Agency are proud to be involved in the fundraising, and we’ve organised a special charity event we’ve called Matches for Mila to raise money for Mila’s vital treatment. On Sunday 27th July the JGM team will be playing 12 football matches in 12 hours, against teams made up of our willing clients and suppliers. Yes you read that right, 12 hours of continuous football! 

The JGM team aren’t exactly in peak physical condition so who knows what will happen!

Mila’s condition...

The specialists have confirmed Mila has numerous growths that sit on top of her brain that block message pathways and cause her problems. Mila has a SEGA (Subependymal Giant Cell Astrocytoma) inside her brain which affects only 20% of patients with TSC. Mila also has a low heart rate resulting from a tumour blockage in one of her heart’s valves.

We are fighting for an important drug called Everolimus which is widely available internationally, but deemed too expensive for the NHS to offer. An adult using this drug can cost about £35,000 per year for life but the benefits have been proven to be completely life changing. The cost is less than half this for a baby.

Recent trials have proved the drug shrinks 95% of brain tumours in children and can also prevent tumours developing on the kidneys, lungs and skin. New research has also shown that it has a beneficial effect by reversing potential learning and behavioural difficulties and preventing seizures. The world’s top specialists in TSC are based in Cincinnati, USA and have offered to help Mila.

Please give whatever you can. It will mean the world to Mila.