About Marfan Trust
Marfan syndrome is a disorder of the body's connective tissue, affecting the eyes, heart and skeleton.As the sole charity in the UK dedicated to improving and saving the lives of those with the syndrome we provide personalised support, undertake research into improved treatments, & raise awareness.
www.marfantrust.org
info@marfantrust.org
Marfan Trust Registered charity number 1198847
