About Ichthyosis Support Group
The Ichthyosis Support Group (ISG) is a small user led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The charity strives to raise awareness of the condition and the ISG amongst medics and the public.
http://www.ichthyosis.org.uk
isg@ichthyosis.org.uk
Ichthyosis Support Group Registered charity number 1142457