Paul Cunliffe

Samuel's Story

Fundraising for Alder Hey Children's Charity
£310
raised of £400 target
Donations cannot currently be made to this page
Saturday Stream - In The Mix, 11 April 2020
We raise funds for equipment and services to ensure Alder Hey remains world class.

Story

I will be DJ'ing a live stream on my website and sharing across all the socials all in the hope that folk will enjoy and donate a little bit of money for an amazing charity that is very close to my family and I, and here is why...

The cute little guy in the pictures is Samuel, my son, and he has a rare condition called Branchiootorenal (BOR) syndrome that disrupts the development of tissues in the neck and causes malformations of the ears and kidneys. As well as this he has facial Palsy and more recently, he has been diagnosed with Epiphyseal Dysplasia. We always knew from birth that he would require a Kidney transplant and in 2019 his Kidneys started to deteriorate. With myself being the live donor we were all set for the transplant in October of that year, but whilst on Dialysis, Samuel developed Peritonitis. We happened to be at a one of his appointments at Alder Hey when he VERY quickly became ill but due to the speed and response of the nurses, we were luckily enough to catch this before we set off on our 1hr 30min car journey home; of which I have no doubt will have made the situation so much worse given how rapid the infection took. Thankfully, he came through this and in December of 2019, despite complications in theatre, he had his transplant and we just managed to get him home for Christmas - with the best present of all!

My family and I want to thank Alder Hay for everything they have done for us and continue to do for us on a very regular basis. I cannot express just how hard the Doctors and Nurses work and how they consistently go above and beyond despite the challenges they face daily - and always with a smile! They save countless lives including my sons so we can only do our little bit to say THANK YOU by donating whatever we can and making a little difference to those who need them. 

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About the charity

Alder Hey Children’s Charity raises funds towards the pioneering work at Alder Hey. Your support ensures the 330,000 children we see each year will have access to the best facilities and equipment, and that the benefits of our innovating work are felt by families throughout the world #JoinUsJoinIn

Donation summary

Total raised
£310.00
+ £65.00 Gift Aid
Online donations
£310.00
Offline donations
£0.00

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