Thanks for taking the time to visit my JustGiving page.

Just over 6 yrs has passed and myah is as healthy as can be..Her shunt in her head which drains fluid constantly keeping her alive is still functioning well..just the 1 blockage back in March 2016 which resulted in her brain coming under pressure again but nothing since...her vision is up and down ...patch treatment now and again as both eyes wonder..learning skills at school are on par with the other kids her age  but she insists school is boring...her memory is amazing...she still remembers and assembly presentation word for word which they did nearly a year ago.Mri scans have all finished but she still has a yearly check up at Bristol to make sure her development is going in the right direction and she isn't growing anything in places she shouldn't be as a result of chemo..just hair..lol

Freya was 3 at the time now nearly 10..she is an amazing sister and daughter ...10 going on16 but she brings normality to everything by having the odd sisterly fight.. her singing is coming along well as is her confidence...she said she wants to appear on BGT ...she enjoyed the live singing session we did and wants to do more..she enjoys raising money for others..

We are planning to do more and will share when nearer the time. 

Thankyou for all your support over the past 10 years really..we did macmillan coffee mornings well b4 myah was born..

Myah will tell you she has a bad brain and she can't remember things...she is learning how to pull on the old heart strings..She loves to talk and at the moment is obsessed with Doctor Who!

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