To honour the amazing effort that William puts into life every day, and especially when faced with adversity, Emma and Andy (William’s parents) are undertaking a number of challenges from 2023 to the present day and plans into the future!

He has Angelman syndrome a severe neurogenetic intellectual and physical condition, life threatening epilepsy, a life limiting lung condition as well as a whole host of other issues. He is non verbal and doesn’t sleep which are two hard things to cope with for everyone! He needs 1-2-1 care for life.

We race to raise awareness of families like ours and fundraise for much needed equipment.

Events include:

2024 Em

-Tokyo marathon -3 March 2024) done! Best race in a long time!

-Boston marathon- 15 April 2024 done! Best race experience! It’s like New York / London on steroids! And got the abbots world majors 6 star medal!

-Ride helen take 2 - completed in a similar time to last year on 12 May!

-Ride London 100 take 2 (may 2024) completed on 26 May! Took a bit longer than last year and had a longer stop due to sadly a more serious accident closing the roads. But nailed it again.

2024 Andy

-Andy’s run 5 ultras and 1 marathon this year and won the distance on 4 of the ultras!

-Andy’s going to have a go at running a 100 mile pb in sub 20 hours in June!!! See updates - managed 50 miles!

-10 in 10 (10 ultra marathons In 10 days) In July- in progress!

2025 Andy

- The Thames Ring 250 - a 250+ mile run along the river Thames, the Grand Union Canal and the Oxford Canal

Emma- 2025 not sure yet!

2023- Emma

-A 2 mile swim (16 Sept) completed in 1:55 completing the London classics medal

-A 65 mile bike ride - Ride for Helen (14 May done in 4 hrs 31) -

-A 100 mile bike ride (27 May) smashed it! 6 hours 46

-A 118 mile bike ride (23 June) completed! Em had a bad day but still finished

-Chicago Marathon (7 October) smashed it 4:59:24

-Portsmouth marathon (18 Dec) done 5.25

Andy: 2023

The Answer ultra challenge NYE 2022 done- came 2nd)!Chocathon marathon (13 January done came 1st)!

Moonlight challenge (18 February done came 3rd)!

A double marathon ( 1 April done - came 8th in 9 hours 36)

Saltmarsh 75 miles ( 1 July)  16:38:07 came 4thA

-100 mile run (20 May) 21:30:05 came 6thA

-200km run (30 Sept) smashed it! 29:50:48 came 5th

-Andy ran Portsmouth coastal with Em. 

The fundraising for 2024 is for various equipment still needed for William.

This year we are targeting paying off the swim spa see below for more info - we are short about £1k,

He need a crelling harness for car (as he’s grown out of his specialised car seat nearly) planes/theatre seats (tbc- circa £300).

It turns out the off road wheelchair isn’t good for off road running so we really need a proper running buggy cost tbc. But probably £4-6k.

Last years fundraising funds have been put to use:

2024

We have just bought a proper running buggy as the off road wheelchair turned out to be unsuitable for running as you cannot fix the wheels, and the sunhood can be pulled off. But we got a second hand running buggy for £600 and william loves it.

William is smashing his trike- is really understanding how to ride. It’s so good for him!

2023

We purchased an off road wheelchair (5k) (also part funded by a charity thank you to fit William so he can join his parents on more road running adventures,

We got his trike (£2.9k) so William might be able to take part in his own sporting adventures ), thank you to charities and local masons for contributing also,

a go-to firefly seat (paid for from charity pot and used thank you) / ) and final fundraising for a hydrotherapy pool swim spa to aid with William’s physiotherapy (circa 5-6k)- this has become more important with the closure of the pool we used to hire.Obviously fitting in training for all these events around both working full time and caring for William is a challenge in itself, made harder with Emma coming back from major knee reconstruction in September 2022.

As the events come up, more information will be added here.

For the back story head here:

https://www.treeofhope.org.uk/ways-to-give/childrens-campaigns/william-goodson-bemorewilliam/