Story
Thanks for taking the time to visit my JustGiving page.
Myself & Elaine are currently hard in training for our latest charity fund raiser, a 10 day trek across Madagascar at the end of October. The trek is totally funded by ourselves.
The charity event is in aid of Myeloma UK, as unfortunately 2 of our close friends are currently suffering from this dreadful incurable cancer, both have enjoyed good health throughout their lives only to be burdened with this dreadful disease, 2 nicer people you could not wish to meet & hence the discovery has totally shocked both myself & Elaine. We would be most appreciative of any donations which will directly to Myeloma UK, the only charity dedicated to helping Myeloma patients in the UK. There is an explanation about Myeloma and the valuable work of Myeloma UK below and a great short video on this page. It is well worth a read and a viewing.
Glenn & Elaine
About Myeloma
Myeloma is a rare and incurable bone marrow cancer which prevents the body producing enough red and white blood cells, leaving patients anaemic and fatigued and with a seriously compromised immune system, leading to all sorts of infections. Simultaneously it destroys the bones, usually the vertebrae, and the kidneys.
The survival rates for Myeloma are truly shocking.
• 20% of newly diagnosed patients die within the first 60 days!
• The overall survival rates have improved rapidly over the past few years thanks to the development of novel drugs but the 5 year survival rate is still only 46%, one of the lowest of all cancers. Myeloma is a relapsing and remitting cancer which means it mutates and sooner or later overcomes the ability of a patient's current drug to work. The patient then needs a newer or better drug, or it is the end of the line.
After years of under-investment by the pharmaceutical companies (mainly because Myeloma is so rare – only 97% of people have ever heard of it), thanks to the work of organisations like Myeloma UK, there are now many potentially game-changing drugs in the pipeline. Thanks to the new drugs, this cancer is becoming easier to mange and there is a hope that a cure is on the horizon. But Myeloma UK urgently need funds to help accelerate the development of these drugs by running clinical trials and working as a powerful patient advocate with the pharma companies, regulators and Governments. If the development of new drugs is delayed, time will run out for patients like our friends Bob and Alex.
Please help us.