Jack Kent
Are we nearly there yet?
Fundraising for Great Ormond Street Hospital Children's Charity
Story
Thank you for taking the time to read our just giving stories, we welcome donations of any size as every little helps. We appreciate not everybody is in a position to donate so please like and share....
Thank you in advance to the Team GOSH climbers and supporters: Jack Kent, Kayleigh Dillon, Nathan Sims, Ben Moore, James Moore, Gary Peek, Daniel Sillis, Craig Roberts, Ed Bennett, Chris Sainty, Martin Moore, Mark Kent and Alex Lal
Danny
Danny was born on Thursday 23rd March 2017 at 1:55am, with a text book delivery. On his 10 day check-up the midwife noticed an overlap in the back of his skull. The next day we met a paediatrician who sent Danny for an X-ray and couldn’t conclude if it was an overlap or fused. Danny was then referred to Great Ormond Street Hospital. His first appointment was on Thursday 1st June with Professor Dunaway, he confirmed that the back of his skull was fused. The two options were, to have an operation before 6 months to place two springs in Danny’s skull to open up the fuse this would reduce the impact and recovering time, than operating after the age of 6 months.
After much consideration Jack and Terri decided to go ahead with the operation before 6 months. This was successfully carried out on the 19th July 2017 by Mr Owase Jeelani. The operation went has planned however Danny lost a lot of blood and needed a blood transfusion the following day. Within half an hour of the transfusion Danny was back to his happy self and was allowed to go home the next day.
Four weeks later Danny had a check-up at Great Ormond Street and all the medical team were thrilled with his progress. Then on Wednesday 15th November another successful operation removed the springs from Danny’s skull. Once again Danny bounced back to his usual happy self quickly.
Terri and Jack are truly thankful for the treatment and care Danny has received so far from Great Ormond Street hospital. Due to this fantastic care and attention they felt thank you just wasn’t good enough and felt compelled to do something in return. Danny story touched all of his friends and family and it wasn’t long before a team was put together of climbers and volunteers to push themselves physically and raise money for a great cause.
Toby
When I was 20 weeks pregnant I found out I was having a baby boy due 25th Feb 2016. At the scan I was told by the Sonographer that the baby had dilated kidneys. All through my pregnancy the Queen Elizabeth Hospital kept a close eye on the baby. The left kidney was about 85% dilated and the right one was about 52% dilated. When Toby was born he was immediately started on antibiotics which he would take daily for probably the rest of his life. At three weeks we went to the QEH for an ultrasound scan which puzzled
the doctor’s as it appeared that Toby only had one kidney but both were dilated?
Toby went back to the QEH for a mag 3 nuclear scan, this would show his kidney function and see if anything needed to be done. Toby had several more scans and blood test at the hospital. He was admitted twice with UTI’s due to his kidney not functioning properly, Toby’s temperature goes up to forty degrees he becomes floppy and very docile. So intravenous antibiotics as wells as his daily antibiotics were administered and within a couple of days he had recovered.
When he was around ten to twelve weeks old the doctors at the QEH referred Toby to the urology specialists at the NNUH. We went for more scans and another mag 3 scan. This time I was contacted by Mr Mathur head of urology at the NNUH. He asked if I was sitting down as he had the results from Toby’s scans. It revealed that Toby had a rare condition known as “horseshoe” kidney which meant both kidneys were attached in the shape of a horseshoe. Mr Mathur said it was serious and if not operated on Toby would only survive until he was 7-10 years old. Because of this he referred us to GOSH. This was devastating news for me, my initial thought was “well they don’t send children down to London for nothing”.
In August 2016 we went for our first appointment at GOSH, it was very daunting and quite scary not knowing what to expect. Everyone was so helpful and kind and nothing was too much trouble. Toby first appointment was with urology Dr Ravi as he called himself. He explained that yes Toby had horseshoe kidney and that it did need operating on. The plan would be to try and split the kidney back to two separate functioning kidneys. They explained this would depend on the location of the join and this wouldn’t be known until the operation. Toby had lots more visits to GOSH for scans and functioning tests. GOSH decided it would be safer for Toby to be operated on by a “Robot”. His operation was a laparoscopic Pyloplasty for horseshoe kidney.
We travelled down to London on February12th staying in accommodation opposite GOSH ready for his operation the next day. The morning of Toby’s operation arrived, we were taken to the ward where the doctors and nurses did all Toby’s pre-op checks. At 8 am we were collected taken to theatre. It broke my heart to watch my little boy being put to sleep but I knew he was in safe hands. I was called back at 5pm to theatre to find Toby still sleeping. The anaesthetist were struggling to wake him, he hadn’t woken properly but was stable. Dr Gherian who arrived out of the operating theatre came to speak to me to explain that during the operation they had a complication. The join on Toby kidney was in a dangerous place so they couldn’t separate it to make two. They did manage to remove the damaged kidney and left Toby with the functioning half, this would mean providing he kept healthy he could survive with this alone with the help of regular antibiotics though for the rest of his life.
Toby was still very sleepy following his operation causing concern but the nurses kept a close eye on him and by mid-morning the next day he was fully awake. He had drains and a stent to keep his new tubes open until they had healed. We wouldn’t know if the operation was a success until around six weeks later when Toby would have another scan to see if everything had stayed in place. Toby was allowed home after 5 days in GOSH. Six weeks later we returned for another scan and to see Ravi unfortunately in this six weeks Toby became poorly with more UTI’s s his appointment was brought forward. The antibiotics that Toby was taking every day were no longer working so the doctors changed them and hopefully the new ones would work and help prevent anymore infections. At this appointment Dr Ravi said he was pleased with Toby’s progress and the
operation went well.
Toby continues to get infections but not as often. He return to GOSH January 2018 for Mag3 functioning scans to see if his kidney is working enough for his body, and whether any further operations are needed and how successful the original operation was.
Thank you once again for taking the time to read our page, we appreciate any support and contribution you can make.
#TEAMGOSH #AREWENEARLYTHEREYET #3PEAKS #24HR
Thank you in advance to the Team GOSH climbers and supporters: Jack Kent, Kayleigh Dillon, Nathan Sims, Ben Moore, James Moore, Gary Peek, Daniel Sillis, Craig Roberts, Ed Bennett, Chris Sainty, Martin Moore, Mark Kent and Alex Lal
Danny
Danny was born on Thursday 23rd March 2017 at 1:55am, with a text book delivery. On his 10 day check-up the midwife noticed an overlap in the back of his skull. The next day we met a paediatrician who sent Danny for an X-ray and couldn’t conclude if it was an overlap or fused. Danny was then referred to Great Ormond Street Hospital. His first appointment was on Thursday 1st June with Professor Dunaway, he confirmed that the back of his skull was fused. The two options were, to have an operation before 6 months to place two springs in Danny’s skull to open up the fuse this would reduce the impact and recovering time, than operating after the age of 6 months.
After much consideration Jack and Terri decided to go ahead with the operation before 6 months. This was successfully carried out on the 19th July 2017 by Mr Owase Jeelani. The operation went has planned however Danny lost a lot of blood and needed a blood transfusion the following day. Within half an hour of the transfusion Danny was back to his happy self and was allowed to go home the next day.
Four weeks later Danny had a check-up at Great Ormond Street and all the medical team were thrilled with his progress. Then on Wednesday 15th November another successful operation removed the springs from Danny’s skull. Once again Danny bounced back to his usual happy self quickly.
Terri and Jack are truly thankful for the treatment and care Danny has received so far from Great Ormond Street hospital. Due to this fantastic care and attention they felt thank you just wasn’t good enough and felt compelled to do something in return. Danny story touched all of his friends and family and it wasn’t long before a team was put together of climbers and volunteers to push themselves physically and raise money for a great cause.
Toby
When I was 20 weeks pregnant I found out I was having a baby boy due 25th Feb 2016. At the scan I was told by the Sonographer that the baby had dilated kidneys. All through my pregnancy the Queen Elizabeth Hospital kept a close eye on the baby. The left kidney was about 85% dilated and the right one was about 52% dilated. When Toby was born he was immediately started on antibiotics which he would take daily for probably the rest of his life. At three weeks we went to the QEH for an ultrasound scan which puzzled
the doctor’s as it appeared that Toby only had one kidney but both were dilated?
Toby went back to the QEH for a mag 3 nuclear scan, this would show his kidney function and see if anything needed to be done. Toby had several more scans and blood test at the hospital. He was admitted twice with UTI’s due to his kidney not functioning properly, Toby’s temperature goes up to forty degrees he becomes floppy and very docile. So intravenous antibiotics as wells as his daily antibiotics were administered and within a couple of days he had recovered.
When he was around ten to twelve weeks old the doctors at the QEH referred Toby to the urology specialists at the NNUH. We went for more scans and another mag 3 scan. This time I was contacted by Mr Mathur head of urology at the NNUH. He asked if I was sitting down as he had the results from Toby’s scans. It revealed that Toby had a rare condition known as “horseshoe” kidney which meant both kidneys were attached in the shape of a horseshoe. Mr Mathur said it was serious and if not operated on Toby would only survive until he was 7-10 years old. Because of this he referred us to GOSH. This was devastating news for me, my initial thought was “well they don’t send children down to London for nothing”.
In August 2016 we went for our first appointment at GOSH, it was very daunting and quite scary not knowing what to expect. Everyone was so helpful and kind and nothing was too much trouble. Toby first appointment was with urology Dr Ravi as he called himself. He explained that yes Toby had horseshoe kidney and that it did need operating on. The plan would be to try and split the kidney back to two separate functioning kidneys. They explained this would depend on the location of the join and this wouldn’t be known until the operation. Toby had lots more visits to GOSH for scans and functioning tests. GOSH decided it would be safer for Toby to be operated on by a “Robot”. His operation was a laparoscopic Pyloplasty for horseshoe kidney.
We travelled down to London on February12th staying in accommodation opposite GOSH ready for his operation the next day. The morning of Toby’s operation arrived, we were taken to the ward where the doctors and nurses did all Toby’s pre-op checks. At 8 am we were collected taken to theatre. It broke my heart to watch my little boy being put to sleep but I knew he was in safe hands. I was called back at 5pm to theatre to find Toby still sleeping. The anaesthetist were struggling to wake him, he hadn’t woken properly but was stable. Dr Gherian who arrived out of the operating theatre came to speak to me to explain that during the operation they had a complication. The join on Toby kidney was in a dangerous place so they couldn’t separate it to make two. They did manage to remove the damaged kidney and left Toby with the functioning half, this would mean providing he kept healthy he could survive with this alone with the help of regular antibiotics though for the rest of his life.
Toby was still very sleepy following his operation causing concern but the nurses kept a close eye on him and by mid-morning the next day he was fully awake. He had drains and a stent to keep his new tubes open until they had healed. We wouldn’t know if the operation was a success until around six weeks later when Toby would have another scan to see if everything had stayed in place. Toby was allowed home after 5 days in GOSH. Six weeks later we returned for another scan and to see Ravi unfortunately in this six weeks Toby became poorly with more UTI’s s his appointment was brought forward. The antibiotics that Toby was taking every day were no longer working so the doctors changed them and hopefully the new ones would work and help prevent anymore infections. At this appointment Dr Ravi said he was pleased with Toby’s progress and the
operation went well.
Toby continues to get infections but not as often. He return to GOSH January 2018 for Mag3 functioning scans to see if his kidney is working enough for his body, and whether any further operations are needed and how successful the original operation was.
Thank you once again for taking the time to read our page, we appreciate any support and contribution you can make.
#TEAMGOSH #AREWENEARLYTHEREYET #3PEAKS #24HR