Emma Cope

Emma's Fundraising page

Fundraising for NesT
£70,444
raised of £75,000 target
Sponsored Walk, 26 September 2009
Participants: Emma Cope, Lisa Cope, Sandra Cope, Ian Cope
NesT

Verified by JustGiving

RCN 1107601

Story

My name's Emma and I've just turned 13, but I can't enjoy being a normal teenager.  Last year, after being very ill, I was finally told that I have a very rare Kidney Disease called FSGS.  Kidney Research is funding the research carried out by a charity called NeST, who are doing a study on FSGS.

Please help me to raise money directly for NeST as I desperately need them to find a cure for FSGS.  Without a cure, both my Kidneys will stop working and I will need to spend the rest of my life having to be hooked up to a Dialysis machine, for many hours, nearly every day.  Even a Kidney Transplant may not make me better, as FSGS can also attack transplanted kidneys.

My family and friends accompanied me on the Walk on the 26th September and it was a brilliant day, as you can see from the photos on the left.  I am so happy to have completed the distance.  Thank you so much for all the donations so far but I am still trying to raise as much money as I can .  After all, you're not just saving my life, but everyone else who has FSGS.

Thank you from the bottom of my heart ... 'cos that's still working ok !  Emma xxxx

 

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About the charity

NesT

Verified by JustGiving

RCN 1107601
Nephrotic Syndrome (NS) affects approx 10,000 people in the UK, majority are children, with no known cause or cure. The current treatment is non-specific and highly toxic, with many potentially life-threatening complications. NeST funds Bristol Children's Hospital in researching NS to find a cure.

Donation summary

Total raised
£70,444.00
+ £7,366.36 Gift Aid
Online donations
£52,518.10
Offline donations
£17,925.90

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