Everyone who has met Carys agrees that she's a sparkly little angel, full of life and laughter. Rett syndrome means she can't walk, talk, or even play with toys. Yet we feel incredibly lucky and privileged to be her parents. She has taught us a lot of things.

Some girls with Rett can't even sit unassisted and need a feeding tube. They often develop curvature of the spine and can experience multiple seizures every day. Theres a chance with any of these girls that when you put them to bed they won't ever wake up again.

In 2007, the symptoms of the disease were completely and unexpectedly reversed in the laboratory.

Further research has shown this is possible even in models of late stages of the disease. You could help us get a cure to girls and woman living with these symptoms today. Without significant funds, it could take 20 years or more. For us that is simply too long.

A cure for Carys means a cure for every one of these little girls. Its something that we passionately believe in.