Lyme Regis youth football team and friends are doing a sponsored walk to raise money for oli’s new chair. It will be followed by a charity day including football match , music and other fun things for adults and children on sunday 26th Augusg 2019 at Lyme RegisFootball Club (12-6pm). Please support us by donating and come along to this special event.

Here’s our story....

Oli Apps is a 9 (nearly 10) year old boy with complex disabilities and health issues due to a genetic mutation on Gene STXBP1 Chromosome 9q. Oli is reliant on his loved ones to help him with even the most basic of tasks which we all take for granted everyday. In simple terms the mutated gene plays a vital roll in the development of messages sent from the brain - Oli is not brain damaged the messages just simply don't get through. As well as his physical disabilities and inability to communicate Oli is severely epileptic. On a bad day he can suffer more than 20 epileptic seizures of varying different kinds, and this can be heartbreaking for his family who have no way of helping him other than making him safe and comfortable. Oli loves nothing more than to sit in his beanbag watching his favourite films but oli's bean bag is too small for him and realistically too dangerous. There is little to no postural support meaning he is not really able to stay in it for long period of time due to the risk of other physical problems associated with undeveloped muscles and joints. Oli is therefore mainly restricted to staying in his wheelchair which is not comfortable and doesn't allow him to rest the way he needs to sometimes on the worst days. We want to provide Oli with a P-Pod chair which are specially designed for people like Oli together with accessories which will make it mobile and versatile for use. But as with all items disability labelled these come at a hefty price. Oli is a happy gentle boy and brings lots of love and fulfilment to all around him, and deserves this extra comfort in his life. His birthday is just over a week after this special event... what better present could we give him.

Kelly (oli’s mum) xx