Florence is a beautiful happy, loving and strong willed little girl. She suffers from a rare life limiting condition called late infantile GM1. This horrendous and cruel condition has already robbed her of her ability to walk and talk. It will slowly take away the abilities she still has resulting in her being taken from us far too soon to comprehend.

Her zest for life is contagious and I Jen as her mum along with an army of supporters am determined to give her the best life she can possibly have while creating beautiful memories with her big brother Riccardo. Whist her future is uncertain we as a family has been given a timescale and a heartbreaking prognosis. I am determined to live and love life everyday with Florence and everyday is precious to me and those that love her dearly. With that in mind this next crazy fundraiser is to raise money to keep Florence and Riccardo in supply of beautiful holidays and memories that we can hold onto as a family. The money will also support Florence in any alternative medical treatments not provided by the NHS.

So what I hear you ask could it possibly be!!!??? This one i‘m not afraid to admit I’m actually quite nervous for this one!!! We’ve done a zip wire ar 80mph and jumped out of a plane at 15,000ft!!! So this time myself and two braver than brave souls are strapping outselves to a light aircraft and doing a WING WALK!!!!!!!

I‘m really aware times are tough so please anything you can donate would be truly appreciated and used to help Florence have the best time and memories with her family.

Thank you for reading and all your support.

Much love

Jen, Flo and family xxxxx