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Story

Harper loves nursery, playing with her friends, meeting new people and all things Bluey. She loves it when her brothers and sister play with her and has a smile that lights up every room!

In April 2023, aged just 15 months, Harper was diagnosed with high-risk neuroblastoma, a rare and aggressive childhood cancer that has a 40-50% chance of long-term survival at diagnosis.

Harper's Story

A couple of months before her diagnosis, Harper had started to develop a small bruise under her eye. Initially, mum and dad dismissed this the result of Harper becoming more mobile, following treatment for hip dysplasia, and perhaps banging herself with a toy.

After the bruise began to grow and her eye changed shape, Harper was taken to the GP who asked for to review again in 2 weeks. Following no action at that review, Harper was taken to A and E who referred her to the Manchester Royal Eye Hospital. The ophthalmologist who saw her that day insisted on scans and referred to oncology. Over the next week or so, Harper underwent a series of tests, including an MRI, CT and Ultrasound Scans, as well as a biopsy of the tumour that had caused the bruising to her eye.

The news came that Harper had cancer. A rare form called Neuroblastoma, which only affects around 100 children per year in the UK. The day we got the news was crushing. We felt dazed and confused. The specialist had said she didn’t present like a typical Neuroblastoma patient. More procedures followed including a bone and bone marrow biopsy and the fitting of a central line (used to deliver chemotherapy and other medicines).

Harper's results were in. Stage 4, high-risk, Neuroblastoma. The results of scans showed that Harper had metastases in multiple locations across her body and skull. Harper began treatment straight away.

Prognosis:

Less that 50% chance of surviving 5 years. Approximately a 60% chance of relapse. Less than 10% chance of beating a relapse.

Treatment so far

Harper started treatment within hours of being diagnosed. She is half way through her 80 days of Rapid COJEC (induction) chemotherapy, during which, she has already needed several blood/platelets transfusions, numerous hospital stays, and various courses of antibiotics to fight potentially risky infections.

What’s next?

At the end of her Induction Chemotherapy, Harper will be scanned and tested to see whether she is ready for step 2 of her treatment plan, surgery.

Beyond that, she will have High Dose Chemotherapy, which will require stem cell harvesting and isolation at the hospital. Radiotherapy and immunotherapies.

Once this is complete, there remains a risk that the cancer will return. We are raising money for Harper to receive revolutionary treatment in which could imrpove her long-term survival, and for any treatment she made need in the future.

Harper’s Fundraising Campaign:

We aim to raise £300,000 to cover the cost of the treatment and travel to the USA. Any funds that remain following Harpers treatment will be used to support other sufferers of Neuroblastoma.

How you can help

There are many ways you can help Harper:

1. Make a personal donation

2. Sharing and following her story on Facebook or Instagram

3. Hold a fundraising event

4. Getting sponsored to take on a challenge.

Those that join our fight, will become part of Harper’s Army.

You can make a donation via this page.

If you would like to help to support Harper’s Campaign please get in touch via email: harpers_army@outlook.com