We did it!
Sarah Bailey raised £850 from 51 supporters
or
Start your own crowdfunding page
Closed 02/03/2018
Weʼve raised £850 to help Esmae-Rose get private treatment for PANDAS/PANS and any other equipment or medication she needs to help her have a childhood.
- Funded on Friday, 2nd March 2018
Don't have time to donate right now?
Story
One day we wished upon a star and Esmae-Rose came true.
She was perfect. She was funny. She was our family's dream come true.
Always happy. Always playing. Always the light in everyone's day.
The only worry she ever had was having to wait for cookies.
Always fearless, always busy and always excited.
Beautiful. Intelligent. A social butterfly. Kind. Perfect.
On the first day of the school holidays (2017) Esmae came out in chicken pox. Everything seemed to go swimmingly and the pox didn't seem to bother her.
Over the following week we noticed Esmae started raising her shoulders and tipping back her head. Like a tic. It seemed purposeful at first and we thought it was just a funny phase she was going through.
Over a matter of days Esmae started to become distressed if she couldn't wave or blow kisses from a particular spot in the window.
She started smelling her hands after touching things and her behaviour became 'naughty' and 'bossy'.
Esmae became distressed at bedtime if things weren't 'right' or untidy - including her bed covers.
Esmae became angry, aggressive, repetitive, sad, violent, frustrated, anxious, vacant, impulsive, forgetful, emotional and 'lonely'.
Esmae's tics worsened. We were terrified.
We went to DMH and asked them to help us. Esmae was admitted. She had an EEG and a liver function test. They couldn't help us.
Esmae stopped eating. Even the things she loved. The tics got worse. We watched her deteriorate.
She had developed horrific OCD symptoms and started begging us to help her.
Finally, our case was passed to the RVI.
Esmae-Rose had Strep.
Esmae-Rose has PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep) / PANS (Pediatric Acute-onset Neuropsychiatric Syndrome)
Our four year old needs CBT to be able to have a chance at a childhood and it needs to be with a private therapist that specialises in PANDAS/PANS.
Please help us try and get our daughter back. Please.
Updates
2
- 6 years ago
Sarah Bailey
6 years agoShare this update to help us raise more
- 6 years ago
Sarah Bailey
6 years agoShare this update to help us raise more
Sarah Bailey started crowdfunding
Leave a message of support
Supporters
51
Anonymous
Feb 7, 2018
I watched this video and was such a emotional thing to watch especially as a parent myself,I hope that your little girl gets everything she needs and you get to your target💖
£5.00
Mary Jones
Feb 5, 2018
Sending u all the love 💖 I can good luck Esmae-Rose. Xxxxxx
£30.00
Leanne Fisk
Feb 3, 2018
£10.00
Susan Ward
Dec 19, 2017
Them snowmen just melted my heart xx
£10.00
Kelly Wreglesworth
Dec 16, 2017
Merry Christmas - hoping that you reach your goal xxx
£50.00
Natasha Hill
Dec 16, 2017
Xxx
£10.00
Michelle Dodds
Nov 30, 2017
Raised by some of my lovely Avon customers.. good luck with your fundraising.. keep smiling Esmae-Rose xxx
£25.00
What is crowdfunding?
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
Great people make things happen
Do you know anyone in need or maybe want to help a local community cause?
Create you own page and donʼt let that cause go unfunded!
About Crowdfunding