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Closed 16/05/2020

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£5,394
raised of £5,000 target by 246 supporters

    Iʼve raised £5,394 to campaign in memory of Colin Rogers for 24-7 access to clot removal treatment for Welsh stroke victims

    Funded on Saturday, 16th May 2020

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    Story

    ***Update August 2020 - we have moved the campaign to https://tributefunds.stroke.org.uk/In-Memory/Colin-Rogers - thank you for thinking of Colin, and we hope to see you there***

    We are raising money to start a campaign in memory of Colin Rogers so that others can get the lifesaving treatment he was denied. Up to 500 people a year in Wales may die or be left profoundly disabled because of a lack of availability of a stroke treatment called endovascular thrombectomy - an x-ray guided operation where the clot causing the stroke is removed. This has to be done within 24 hours or it is too late.

    Colin died at the age of just 55 from a massive basilar artery stroke. He would have been suitable for the treatment (although there was no guarantee of it’s success) but family were told that this treatment is unavailable for Welsh patients on the weekend. During the week there is an arrangement for stroke victims to be transferred to Bristol for treatment if there are beds available. There often aren’t. Colin was taken ill on Sunday morning.

    Colin is not the only person to have died because of this ’postcode lottery’ and this is not a new problem. We want to change this. We want to raise awareness and campaign for equal access for patients, such as Colin, who will die or live a profoundly disabled life without treatment. We want to make a difference so that people are not failed by the system as Colin was.

    Colin was the beloved husband of Ellen, father of Callum and Brogan, grandfather of Henry, brother of Kath, Mike, Des and Ruth, uncle of Hannah, Tim and Lyra. Colin was a dedicated mental health nurse caring for people with psychiatric and neurological injuries. He dealt every day with the devastating effects of stroke for Welsh people. We want to use his death to help to treat patients so that they don’t suffer in this way.

    If anyone has contacts who may be able to help with the campaign, please get in touch at colinrogers.campaign@hotmail.com. Please consider writing to your local MP/Assembly Minister about the issue.

    You can read more about the issues and treatment here:

    https://www.bbc.co.uk/news/uk-wales-41469141

    https://www.theguardian.com/society/2019/feb/03/scandal-of-stroke-patients-left-disabled-by-lack-of-specialists?CMP=Share_iOSApp_Other

    https://www.stroke.org.uk/sites/default/files/1718.149b_-_psp_-_thrombectomy.pdf

    Depending upon the success of the campaign, costs may remain low. Any remaining money will be donated to The Stroke Association in Colin’s name. You can find more information about their work at www.stroke.org.uk

    You can find out how the campaign is progressing here https://colinrogerscampaign.home.blog/

    Updates

    9

    • Hannah Fox4 years ago
      Hannah Fox

      Hannah Fox

      4 years ago

      2/2 It will likely be slow progress to a sustainable Welsh service as the services need to be established and doctors trained, however, the situation right now for patients is still not good. Interim arrangements appear to have failed, even before the pandemic hit, and the postcode lottery continues. We want to ensure establishing this service stays on the agenda for the Welsh Government through these troubling times. Thankfully our friends at the Stroke Association will continue to help us, and we will continue to campaign in Colin's name.

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    • Hannah Fox4 years ago
      Hannah Fox

      Hannah Fox

      4 years ago

      1/2 Thank you to everyone who has donated. We have now set up a permanent tribute fund with the Stroke Association. They are helping us to move forward with the campaign and Colin's page can be found here https://tributefunds.stroke.org.uk/In-Memory/Colin-Rogers As of August 2020 we can confirm that endovascular thrombectomy has now been routinely commissioned by the Welsh Government. Whilst this is excellent progress, ensuring that things continue to progress (particularly in these difficult times during the pandemic) is a priority for us.

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    • Hannah Fox5 years ago
      Hannah Fox

      Hannah Fox

      5 years ago

      Hooray! We have confirmation from the Welsh Health Minisyer that “securing a sustainable thrombectomy service for Welsh patients is a priority” and that “a service specification for thrombectomy is going out to consultation”. We’re pushing for timescales and aware that at this point this is still just words, but it’s the first confirmation we’ve had that he recognised the issue and that things are happening. We still need to keep the pressure on, so thank you all for your support. We’ll keep you updated!

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    6 years ago

    Hannah Fox started crowdfunding

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    Page last updated on: 8/31/2020 14.44

    Supporters

    246

    • Anonymous

      Anonymous

      Nov 11, 2019

      With love from all your friends at Aberpennar Court XXX (money raised at coffee morning)

      £85.00

    • Rhian Chamberlain

      Rhian Chamberlain

      Oct 14, 2019

      This donation is given with the money raised from Music Now Rock Revival Njght. Thanks to everyone who attended and made the night such a success.

      £624.77

    • Caroline Wilson

      Caroline Wilson

      Sep 7, 2019

      Well done Hannah! Great running and a fantastic cause. So sorry for your loss xxx

      £50.00

    • Vanessa Norton-Edwards

      Vanessa Norton-Edwards

      Sep 7, 2019

      Well done, Hannah!! What an awesome thing you are doing.Huge hug,Vanessa, Rob, Paige and Xavier

      £20.00

    • Melanie Gibson

      Melanie Gibson

      Sep 3, 2019

      Sorry to hear about Colin and Good luck again Melanie x

    • Anonymous

      Anonymous

      Sep 3, 2019

      Sorry to hear about Colin. Good luck x

      £20.00

    • Jen Murphy

      Jen Murphy

      Sep 2, 2019

      Good luck Hannah! You’ll be fab! Such a worthwhile cause Xx

      £10.00

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