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Hi everyone!!

My name is Claire,

I have a young daughter called Chantelle, she has a rare condition known as RSS” Russell Silver Syndrome” This condition dramatically effects  growth , one side of the body maybe also be shorter than the other & feeding can be very difficult in a lot of cases an operation is necessary were a gastro tube is fitted.

Chantelle is doing well & what she lacks in size she makes up for in “brains” I’m fund raising for a charity very close to me heart it’s called the “Child Growth Foundation” They have been able to give my family lots of information on the rare condition “RSS” through them we have talked & made friends with other family’s that have children with “RSS” I can’t tell you how reassuring it is to read about other parents experiences & share information on this rare condition.

The CGF (child growth foundation) have information on every identifiable growth-related abnormality,

                                                             CGF aim is to-

Support and encourage all persons (either children or adults) who have growth disorders, and their families, in any manner which is charitable in accordance with the law of the United Kingdom. Promote and fund research into the causes and cure of growth disorders in children within the area of benefit and to publish the results of such research Educate the public in general and workers in the medical profession in particular, in the problems and difficulties encountered by those with growth disorders. Encourage the regular monitoring of growth and development criteria by medical professionals, at all levels, and facilitate such monitoring by identifying and making available on loan or for purchase equipment suitable for the purpose.

I would like to Raise awareness & give something back to the child growth foundation, so I’m going to do a sky dive from 14,000ft, the jump will be sometime in August at the “black knights” in Lancaster so it’s not long till then(I’m already scared!!)  

Please, please sponsor me thank you...

Best wishes

Claire Jay  

I have now completed my sky dive from 14,000ft it was so amazing, I enjoyed every minute of it and landed safe to tell the story.

I want to thank the people that have been kind enough to donate money to this charity.

You can still donate on this page if you wish too.

Thank you for all your support.